IMPACT OF BURDEN OF CARERS FOR PEOPLE WITH DEMENTIA

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IMPACT OF BURDEN OF CARERS FOR PEOPLE WITH DEMENTIA

CHAPTER ONE

INTRODUCTION

Background of the study

Dementia is expected to become a serious health and social burden of disease in the older adult population given its naturally progressive and irreversible course. The problem is especially severe in low-to-middle-income countries (LMICs), where dementia is the most important independent contributor to disability in the elderly and resources to diagnose and treat dementia are limited. By the mid-21st century, 78% of the world’s older adult population will reside in LMICs, with expected concomitant increases in dementia cases. The most common type of dementia, accounting for 60–80% of all cases, is that resulting from Alzheimer’s disease

LMICs are characterized by low levels of awareness regarding dementia as a chronic degenerative brain syndrome, and by an absence of supportive health and welfare services. Almost all patients with dementia are cared for at home by a co-resident family member. This situation is unlikely to change in the near future, as institutional care is neither affordable nor culturally acceptable. It is important to realize that AD not only affects the patient, but also the whole family and particularly the caregiver. Providing care for people with AD is particularly demanding as the needs for care escalate with the progression of the disease. Because caregivers play such vital roles for people with dementia, it is critical to understand the factors that affect their caregiver burden. George and Gwyther defined caregiver burden as “the physical, psychological or emotional, social, and financial problems that can be experienced by family members or friends who care for impaired older adults.” Stull et al concluded that caregiver burden is a unique domain of the caregiving experience.

Identifying possible predictive factors of perceived burden among caregivers of patients could improve integrated healthcare strategies for this type of illness. A number of variables, including the caregiver’s sociodemographic characteristics, the clinical characteristics of the patient’s illness, and the social support and personal resources available to the caregiver determine the perceived burden of caregiving . A version of the caregiver stress/appraisal model was proposed by Yates et al.[9] and assessed by Chappell and Reid [10]. Currently there is no consensus regarding the predictors of high levels of burden of caregivers especially those caring for patients with mild dementia. We used an adaptive version of the stress-appraisal model of Chappell and Reid and assumed that: (1) primary caregiver-stressors (cognitive impairments, functional disability, and problem behaviors) lead directly and indirectly to caregiver burden; (2) this indirect relationship is mediated by one of the three mediator variables: perceived social support, family function, and caregiving experience; (3) the number of caregiving hours is treated as the primary appraisal variable

Statement of the problem

There may have been previous researches in this subject. This work gives further explanations and analysis in awareness of professions in business education among secondary schools

Objectives of the study
To understand the complexities connected to dementia
To identify the risk faced by care givers taking care of individuals with dementia
To recommend support measures for help carers of people people with dementia to engender improved well being of people with dementia.
- Research questions
What are the complexities connected to dementia?
What are the risks faced by care givers taking care of individuals with dementia?
What support can help carers of people with dementia improve their wellbeing?

Research hypothesis

H0: There is a weak relationship between care-givers activities and improved well being of persons suffering from dementia

H2: There is a strong relationship between caregivers activities and improved well-being of persons suffering from dementia

Definition of terms

Care giver: is a paid or unpaid and without formal training (in the related treatment) member of a person’s social network who helps them with activities of daily living

Dementia: it’s a term that covers a wide range of medical conditions, including Alzheimer’s disease; symptoms include memory loss.

Burden: To give someone problems, trouble, or responsibilities

Well being: The condition of an individual or group

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